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I can only mumble gibberish even without a trach so I suspect it won't work for me regardless? Lol

need to start looking for a wheelchair and carers, need to plan ahead in advance

only my eyes are tired, paralyzed from neck down I spend 14hrs on the wheelchiar daily. Everyone asks if I am tired but is hard to be whenI just sit all day

tudca taste foul, even though peg it still makes me feel sick lol

glad your dad has been trached, huge qol, just gotta avoid pneumonia. Ie proper hygiene during suction, caregivers wearing mask etc

maybe once a month

the paramount has this mode where it makes it like a sitting position , I guess good when you not sleeping. Remote has a screen so I can tel how high, angleof bed is. Has an app that let's you control without remote.

I was actually going to reply but I may have it, but I chalk it down to less opportunities to do it normal because well I am paralyzed lol

I was using an Invacare but have since upgraded to a Paramount which is muc better.

hlots of researchers have argued that als are a variety of different illnesses that simply has the same clinical outcome ie motor neurons degeneration , if you look at the end to end biochemical process you can see why this is the case tell as there is so much that could go wrong and depending...