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Hi Robert. I have also been checking in to see how things went for you. I'm so glad that they don't think ALS! I also know that the joy that such news should bring can be tainted by still not knowing what the heck is going on! I've just been diagnosed with thoracic outlet syndrome in addition...

Hi Robert! I'm glad you're going to Rochester and I will pray for some answers for you. I still don't have my thing completely nailed down but do know that it's some combination of lupus and other autoimmune nonsense. I will be going on Methotrexate soon and trying to get off prednisone...

:smile:Thanks everyone so much for the good wishes. This is, without a doubt, the best forum on the internet. I've checked out some lupus forums but have yet to post. I hope everyone had a great Thanksgiving. I had to go off the Plaquenil for awhile as it was making me feel funky but I'll...

Hi all. Many of you have supported me for this past year and followed my story and I am, can't believe it, finally diagnosed after being in limbo for about 10 months. I saw a rhuemy today in Denver who said "Well, you have lupus. No doubt about it." As many of you know, I just returned from...

Hey all...Well I'm still in Arizona. Should be done today. I wish I could say that I've been enlightened but there haven't been any "Aha" moments. We went through a day of thinking I had pulmonary hypertension (second time this has happened) and had to have a right heart catherization to rule...

Thanks everyone for the good wishes. I'll update when I can!

Hi guys. Just wanted to give an update to those of you that have followed my complicated story. On a whim, I decided to call the Mayo Clinic yesterday as I'm getting more and more frustrated with seeing multiple docs and none of them coming to conclusions. Anyway, they said that yes they...

Cindy, I sent a PM back to you. Let me know if you didn't get it...I wasn't sure how to do it. Tracy

Well...I saw Dr. Good yesterday who is a very well respected pulmonary doc at National Jewish. He is not convinced with the Lupus picture although I am feeling somewhat better on the Voltaren. He said he sees about three Lupus patients a day and he said "I have a lot of gray hair on my head...

Thanks you guys. I think about all of you every day and I'm so thankful for the support. I'll update you after tomorrow's appt. Rose, just curious...what immunosuppresant did they put you on? My rheumy prescribed a NSAID for me (basically strong ibuprofen). I have been in limbo for so long...