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  1. R

    Bulbar symptoms, but i was wrong.

    I have been on here twice. I have had muscle twitching all over from head to toe. Got diagnosed 10 years ago with bfs. 10 years on iv had swallowing issues, speach issues etc, saw a neurologist recently, they looked at me for all of 45 seconds and said no atrophy on tongue, no extreme...
  2. R

    Bulbar symptoms

    Been having swallowing issues for over a year and half, followed by widespread muscle twitches. Over the past 5 mo the iv had slurred speach, difficulty manoeuvring tongue and now hoarse voice is coming in. Got a neuro appointment on the 15th march, and asked to speak to the doctor about a ENT...
  3. R

    Bulbar symptoms

    I'm not trying to show disrespect to anyone with this disease or affected by it. Its just really scary these symptoms. Apologies
  4. R

    Bulbar symptoms

    Iv not had a swallow test as I can't get into see my GP and still no update on neuro appointment. More and more food is getting caught in my throat. Not choking but defo not going down until I drink something to flush it down. I can actively feel my swallow not working properly.
  5. R

    Bulbar symptoms

    Couple of weeks on, hoarse voice, all food feeling like its stuck below Adams apple, things like chrisps or dryer foods difficult to swallow. Constant phlegm at back of throat can't swallow it. Feeling really low atm as just getting worse. The slurred speach comes and goes depending on how much...
  6. R

    Bulbar symptoms

    Having really hard time with swallowing, only with food not liquids. Feels like my throat muscles are just not pushing to food down, anything dry it's just not happening. I have to drink to make it go down. Tongue keeps feeling incredibly fatigued and not moving as it should when talking...
  7. R

    Bulbar symptoms

    Iv not thought it for 10 years I never knew what the twitching was it's only the past year iv thought it could be als as the swallowing has gotten worse and now the speech is quickly following. My legs and arms feel very stiff and the twitching is everywhere. When I see the neurologist and if...
  8. R

    Bulbar symptoms

    Hi guys, In a nutshell I've had body twitching for over 9 years which pretty much have been everywhere on my body. I've had MND fear on and off. I saw a neurologist about 8 years ago and got diagnosed with BFS. Over the past two years I've developed swallowing problems. Not being able to get...
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