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  1. rolark

    Family Caregiving - Radio Interview

    Voice America ran a show called Family Caregivers Unite - where they discuss Family caregiving with ALS. The two people interviewed are 1) an ALS patient and 2) the spouse and caregiver of an ALS patient. I found that it has a lot of good points that we all think but rarely talk about. This is...
  2. rolark

    Manual Wheelchair Suggestion

    I am looking for a manual wheelchair to get out for long walks on the streets and sidewalks now that spring has arrived. The chair is for Gail who HATES (if that word is strong enough) her power chair. We have a light travel chair and a typical Hospital style manual chair but I would like a...
  3. rolark

    CFL (Can Football League) & ALS

    Link being studied in Montreal between professional football players in Canada. In short, there have been 15,000 CFL players in History and 8 have contracted ALS. The rate for the general public is 2 in 100,000. http://www.cbc.ca/sports/football/story/2007/11/22/cfl-football-als.html?ref=rss...
  4. rolark

    Halloween Party a huge success!

    This event is over but I wanted to share it's success for other people looking for a simple fundraising idea. Last Friday (Nov 2nd) some friends of mine with a band had a Halloween party as a fundraiser for ALS. The band is a group of young middle aged guys (www.hardlyaged.com) that get...
  5. rolark

    Minocycline Adverse Effect

    This was in a newsletter from ALS Association I get monthly. Paul Gordon, M.D., at Columbia University working with Robert Miller, M.D., and colleagues in the Western ALS Study Group, presented a Phase III trial of minocycline that showed an adverse effect in the primary outcome, the ALS...
  6. rolark

    Washroom Dignity

    We just bought a Toto Washlet for our house to give my wife some washroom dignity. We did not have room for a seperate bidet so this was simply an electric seat that fits on a toilet that and has a remote control. Seat is heated, washes the front and rear, and dries even has a filter to remove...
  7. rolark

    Personal / Medical alarm

    I was wondering if anyone uses a personal or medial alarm? I would just like to have the comfort of knowing if I was needed when I am away from my wife - whether inside the house or even in the back yard. Earlier in the fall I was cutting the lawn and my neighbor came over to tell me that...
  8. rolark

    Role of your ALS clinc?

    I am relitively new to the whole - ALS clinic vs family doctor relationship. My wife was diagnosed 6 months ago and at that time we were introduced to the ALS Clinic. Our impression was that since our family doctor knew very little about ALS and the Clinic specailzes in ALS that the clinic...
  9. rolark

    Newmarket Ont. Walk for ALS

    September 30th is the first ever Walk for ALS in Newmarket Ont. Hey AL - I am looking for a challange - Accountants don't have as many friends as firemen (but still more than lawyers (no offense anyone)) but would you mind letting me know how much your Team made. I remember an earlier thread...
  10. rolark

    Honda develops brain-machine interface

    Not exactly ALS research but the technology could be used to help PALS communicate. If Honda can make a arm / robot move by harnessing brain waves how difficult would it be to use brain waves to help in speach and other difficulties PALS have. One step at a time. Tim
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