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Help. Any suggestions for treating sores in mouth from dryness and using non invasive ventilator most of the time. My brother is having a terribly sore mouth and can’t find anything to help.

Can anybody give me some advice on how to respond to my brother with ALS? It’s been one year since he was diagnosed. On tube feedings only and uses his ventilator most of the time. Using cough assist and suction frequently. His daily thoughts are what happens when I can’t breathe. He does...

Does anyone know if in the state of Michigan if CALS can be compensated for care giving? My sister in law who helps with the majority of cares is the primary care taker of my brother who has ALS. She works at home for the health benefits and provides care. I know this is a very difficult...

My brother who was diagnosed with progressive bulbar ALS OCT 2022 will be flying to Las Vegas with family for our family reunion. Most likely his last trip. We have a wheelchair for him and he will bring his ventilator and nebulizer. His tube feedings will be sent ahead to a family member...

Does anyone know if the cough assist is a different machine than the breathing machine my brother uses now? I know there is a suction machine that is used with the cough assist . And is there a portable breathing machine or suction for travel? Thank you.

Any suggestions on how many calories a day a person with ALS should be taken in daily. My brother had his peg tube placed recently and has started on Jevity. He was is still eating but appetite has decreased and chewing is more difficult. I am worried that he is not getting enough calories to...

My brother was newly diagnosed with ALS 2 weeks ago. He has had significant weight loss in the last 8 months. I have read that patients have to significantly increase their calorie count. Right now he is eating ok, has a little trouble with liquids. Any suggestions for high calorie foods that...

My brother was just diagnosed with ALS progressive bulbar palsy. Are there different types of ALS? If so is the progression the same? Are there any new treatments available? Heartbroken and having a hard time dealing with it. Any information will be helpful.