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HI! It takes longer then you would expect and I'm not really sure why. I think it's more of an administrative issue than a patient one. The Healey trial can only take like 8 patients per site (hospital that participates). I'm not sure if the total number but it is limited. Also. Scheduling...

Thanks for responding! I just found out I was approved for Medicare on Friday, April 14. The approval date was 12/1/22. This means I missed open enrollment. I didn't get a card, no correspondence. I found out by calling accredo the specialty pharmacy on Friday who said I had a balance of $500...

Hello! Does anyone have any insight: I was employed until December 2022. My employer covered my insurance through January 2023. In February 2023, I began COBRA. I applied for long term disability and Medicare in December 2022. I am on radicava ors. Each month, I would ask accredo, my pharmacy...

Thank you all for your kind words and good direction. It's been a little frustrating fighting for insurance coverage. I vacillate between staying in the game and just wanting to quit being on any medication at all. So thank you for all of the resources mentioned

Hi! I was diagnosed with a motor neuron disease in July 2022 and ALS in September. I live in nj with my husband and 5 dogs 🐕 I am 41. I had been a real active person. Now, I struggle to walk with 2 afos and a cane. My symptoms started in August 2021. Fasciculations then cramping then...