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I have not visited this site much since the spring so I thought I'd give a brief update on my wife, Tammy. Well, its been 4.5 years since diagnosis. She has been on a vent for over a year now. Luckly I have private insurance and with it I get home nursing 24 X 7. Although Tammy can no longer...

I've been taking care of Tammy now for over 3 years. She has required help with everything now for about 6 months. Althought our insurance covers home support and they are here most of the time I've never taken a break..... Earlier this week, Tammys pej, not peg, was blocked and all attempts...

Up until 2 weeks ago Tammy was still able to walk short distances using her walker, use the toilet (had a raised seat), sit in the shower, sleep in our bed. She got really sick stopped eating stopped having bowel movements and looked really terrible. I had to call 911 and get an ambulance to...

Tammy, my wife, has been feeding herself with a feeding tube for 1.5 years now. Recently she has been experiencing problems. These are her comments..."sever heartburn, regurgitation, when i am feeding i get this film in my mouth, abdominal pain, full feeling that you just don't want anymore...

Hi again everyone! Tammy has been having incontinence for 4-5 months now and she is wearing pads to catch the dribbling.... From what we have surmised bladder control is not affected by ALS. Her Dr. is not being much help. I'm just wondering if anyone else has experience this? Update...

Well, it finally happened. My wife fell...thank gawd she had her cell phone on her. She was able to text my cell phone as she can no longer speak..at all! Unfortunately when i saw the message I was an hour away from home and she had sent the message 3 hours earlier! Panic set in....I text...

I'm lying in bed listening to the hum of Tammy's bipap thinking "We need to wake up" this has got to be a nightmare. How could this be happening to my beautiful, loving wife. What has she done to deserve this hellish disease. I had to get up and write my thoughts! Please God take me, leave...

I've not seen any information on this forum regarding BOTOX, yes Botox, to help reduce excesive drooling. My wife Tammy has Bulbar ALS and has lost her ability to swallow and speak, she uses a PEG to feed herself and a communication device to speak Anyway, we live in the country and Tammy is a...

My wife, a nurse, was diagnosed on Feb. 14/2006, Valentines Day, with Bulbal ALS. Happy Valentine's Day! Her first symptom was difficulty with swallowing nd some slight slurring of her speech. These symptoms started very shortly after she tripped and fell, quite hard, hitting her head. We...