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OMG these situations are so difficult to deal with. We have 6 children and had to have this discussion. There is no easy way and there is nothing wrong with letting him know you are very sad and crying is definitly OK as well. I wish you never needed to have this discussion with him. The...

No you are not alone. Everyone using ADP is affected. My wife also received the letter. Bascally ADP will give you payments 4 times a year to the max allowed. We will be responsible to pay the suppliers with this money and anythin over the max will be the patients responsibility. In our...

Your always best to touch base with the Dr. who installed it but my wife's site was sore for a few weeks post insertion. What is it seeping? Blood?

Hi Missy It's made by Emerson and it's a model CM3000. If you decide to purchase on then I strongly suggest that an RT teach you how to use it. Basically you forve air into the patients lungs and very quickly draw (suck) it out and this mimics a cough. As you can tell it's all done by...

Tammy has been home and on a vent for over 2 years and in the beginning it was difficult. Her alarm rarely goes off now, she sleeps through the night and is reasonably happy. Couple of tricks though.... whe have a cough assist machine which we use every hour or two. This keeps the mucus plugs...

My wife and I are CONVINCED that ALS, is some cases, is manifested by external things. Our neuro asked us, on the day he told Tammy she had als, "have you been exposed to any harsh chemicals or toxins?" Now why would he ask this? I see you are from Perth..we are from Smiths Falls.

My wife has been getting botox injections in her salivary glands every 3 months for the past 3 years. It GREATLY reduces the drooling. BUT! The botox has to be injected correctly, the salivary glands are very small. In the early stages the DR. used ultra sound to find the glands. Now she...

Sorry about the terrible news. HOWEVER, my wife is coming to her 5th year with ALS! Yes she is confined to a wheel chair, eats by PEG tube and is on a ventelator but we still have some quality of life. Granted its winter here in Canada but once the snow is gone, in a few weeks, we have day...

Very controversial topic with many diferent opinions. One must choose based on their own beliefs and leave the folks with different opinions alone. What is OK for one person may not be good for others and thats a personal decision. PERSONALLY, if stem cells, no matter how they are...

I have not visited this site much since the spring so I thought I'd give a brief update on my wife, Tammy. Well, its been 4.5 years since diagnosis. She has been on a vent for over a year now. Luckly I have private insurance and with it I get home nursing 24 X 7. Although Tammy can no longer...