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  1. G

    Sept 29 FDA and Nurown

    I hoping that the FDA will pass this Nurown Sept 27 it will give so many people some hope for living. While right now there really is not much to help. Wondering if anyone else did much reading up on this it really sounds very promising. There a link on here to be able to watch the hearing...
  2. G

    Help with Clinical Trials

    Hi, I have a question about clinical trials . My husband has ALS and has been taking Riluzole 50 mg and Relyvrio 3-1 g pack . He would like to go in to a clinical trial but not sure where or how to begin it. I see there are some new drugs that seem hopeful but how do you get into them? I talked...
  3. G

    Tofersen?

    I have a few question because this all so new and confusing to me. My hubby is on Riluzole and Relyvrio along with a lot of other meds for Als sysmtons from a few depression and meds to make him hungry . He had a lumbar puncture to see if it would show some answers. The C9ORF72 says negative...
  4. G

    My hubby just was told he might have ALS Please help so scared

    Hi Iam so new to all of is. It just seems so over whelming I don't know what to do or where to start. My husband who just turned 66 is having test done to see if he has ALS . January 2022 he went in to the doctor for his some hand shaking but only when he would use them. The Neurologist said...
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