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I hope your mum is recovering with treatment to stabalise her bloods. I have a peg and unfortunately also suffered a severe bout of sickness and diarrhoea for three weeks. It turned out I had a gross infection at the PEG site, which was the cause of the upset in my stomach. I also had to have...

I have also had that warm cream put on my ear and then blood drawn from my ear lobe - that isn't pleasant either but better than Al's wrist test! I have researched what a normal CO2 level is and what is a concerning one? What did 45% mean you you Al? 'What do the test results mean? The...

Thank you for all your replies, from which i am starting to understand. So it is possible to have symptoms and have ALS affecting you in the guise of CO2 but the forced air and oximeter tests are not necessarily going to be the tests to pick this up. The ABG test is probably the one to get...

I have a question and hope you learned peeps here may be able to assist. My original results of forced air was well above predicted. I think it may have dropped a little since, probably due to the reduction in physical exercise. I have done 3 overnight oximeter tests done with results coming...

Thrush It may not be a symptom of ALS but certainly likes to co-habit with it. I have had thrush of the mouth and peg site - not nice!. I was told that thrush loves PEG food as it is milky, warm and sticky, ideal for the infection to live in. Having had thrush once now I would immediately...

Rilutec I have been taking it for three months now and think my progress has levelled out a bit and no side effects as yet

Weight Loss issues Jules, Weight loss and people with ALS can be because 1. As you already point out - swollowing difficulties 2. Appetite lessens due to lack of activity 3. Arms are weak and feeding just becomes plain difficult (personal experience) I am sure more knowledgable people can add...

Update BethU I have spoken to the doctor and I have medication to assist stomach emptying as I am holding onto my food high up and due to the low level of activity and not eating solid food the bowel has become lazy. The backup of food resulted in pressure under the diaphragm and therefore...

Help Peg pain Sorry to hijack the thread but I have developed awful pain, like indigestion under the ribs and feeling sick. Any ideas? Had peg for a couple of months now and not experienced anything like this before. I keep having trouble with evacuating as well and had an enema (sorry about...

Thanks Joel, What an interesting atricle, which I have printed off for my district nurse. It amazes me how something so small can produce soo much discomfort and pain! I hope to have this cleared very quickly.