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Thank you for your advice. My sister has decided to forego her feeding in mid January. She has been under hospice care for almost two years. She has an assigned "social" counselor but I'm not sure that is the person qualified to give her the mental help she needs during this difficult time...

I hear that alot of PALS going through boxes of tissues. I suggested to my sister to use wash cloths instead and we bought a pile of them for her. Yes, she goes through perhaps 6-8 a day but it's easy to throw them in the wash and much easier to stay sanitary than with the tissues. It's a...

My sister is on her third nurse within the last 12 months. I don't like the turnover. The first nurse was great, the second one was ok. Jury still out on this third one. And yes they are definitely for profit. Her Medicare statement showed the charges. They are significant.

Just sent some to my sister through Amazon. Small amount but asked her to give it a try. Hope it helps her. Thanks for the information.

Sister diagnosed with bulbar ALS Dec 2021. Somehow is under hospice care. Has feeding tube. So far excess mucus (has suction machine), some choking and wobbly walking (uses walker). Hospice pays for all meds, food, weekly nurse visit, social worker and minister if required. Only takes...

I'm new to this forum. My sister was diagnosed in December, 2021 with bulbar als. Is there really an advantage for her to donate blood? She used to do it all the time. Every time she was eligible but due to her diagnosis has quit.