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hi Sammy. Thank you for your response to my post. I too feel the same way about people telling us to move each day to its fullest etc. it seems like each week at the very least I am waking up with another inability. My disease has started in my hands in my arms and I am presently unable to do so...

Is anyone having problems with staying positive? I am about ready to just quit eating and drinking so that I can go out quickly. I’m trying to work on their logistics right now. Does anyone else have a better idea?

I'm new and just checking in. I have upper body and Upper Limb weakening to the extent that I'm almost unable to use my arms at all. I cannot lift even a bed pillow as it's too heavy. I'm very frustrated. Eating is a chore although I have signed a Health Directive ordering no feeding tube, no...

hi John, I am recently diagnosed as well. My main disease is centered in my upper body including my arms and shoulders and hands. I’m still walking thank God and I do wish to get through this with a little dignity. I will pray for you if you would like.