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    Progressing a bit faster than hoped for

    Thank you to all for your very helpful replies and support. The explanations on the ventilator are very understandable. I will ask for the Astral if its available and will definitely follow up with the Doctors about more detail concerning the settings of >25 IPAP. Once its in place, I will...
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    Progressing a bit faster than hoped for

    Hello to all and a thank you for your support. Its been some time since I have last posted but you all have been very supportive in the advice you've given to me (and to others coming to this community for the first time. I was diagnosed in Oct 2022 and had my first clinic (also Oct 2022)...
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    Ongoing weakness

    Thanks Nikki, That sounds reasonable. They offered some direction on 2nd opinion. I also have an appointment (already set up back in August) for Neurology at another academic hospital for Feb 2023. They've set me up with Riluzole 50mg and it looks like it will arrive this Weds. Other than my...
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    Ongoing weakness

    I have an update after my visit with the Neuromuscular team last week. My wife and I are still processing the shock but the team of doctors confirmed to us that it is indeed ALS. We were only thinking a couple of hours and then a nice birthday lunch together, but it turned out to be 7 hours...
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    Ongoing weakness

    Thank you for your prompt replies. I will take all your advice. 3 days to go now for Neuro appt. will be back later with any findings.
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    Ongoing weakness

    Hello all, and a heartfelt thank you for all that you do on this forum. I have been lurking for a few months now as I go through my odyssey. 60 year old male - otherwise very healthy competitive road racer. It started 9 months ago with painless left hand weakness/clumsiness in fingers...
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