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I recently went for a thyroid scan . My thyroid is full of nodules and suspicious for cancer. It's very large , causing breathing problems lying down. Can als patients handle surgery especially major surgery 😫.

Hi all, my walking is getting worse, I can't stand or walk unaided now. I know I need to use my heavy electric wheelchair. Unfortunately I can't/won't use it due to my 2 little dogs whom would get badly hurt if I ran over them. They don't move out of the way. I was wondering if I buy a...

Hi , I was wondering if you could buy a Forced Vital Capacity test, if so are they accurate. I wanted to test my breathing, having a few problems lately with morning headaches, coughs, getting out of breath. Is forced Vital Capacity test the right device ? Thanks

Hi, I'm still rather confused about the polyphasic potentials on an emg test. Trying to get my head around what they actually mean. I had no polyphasic potentials on my emg , which I thought was unusual for als. I have no neurologist to ask due to the crap NHS in the uk. It's postcode...

The mnd professor at The National hospital queen's Square london, said my als is a slow progressing als, but how can it be slow. In the last year it has spread from my right leg to my left leg then my left arm and hand. That seems fairly fast to me. I understand everyone journeys is...

Hi , I've started getting numbness deep inside both my legs and feet. I thought als/mnd doesn't cause numbness or maybe it's the start of becoming paralysed? My legs feel heavy to, it's like when a dentist numbs you before a procedure sort of feeling.

Hi all, After the shock of being diagnosed with MND I am struggling with my husbands lack of compassion/ empathy. Perhaps it's me being to needy. Maybe I'm expected to just carry on as normal. The thing is I can't just carry on as normal . Literally everything is more harder. I need...

Hi all, I have a question about the emg test. I had one yesterday they was only supposed to do my legs. Back history fascinations in both legs for a year non stop, followed by severe cramps and then weakness and foot drop. For 6 months I’ve had great difficulty walking. It’s like I’ve forgotten...