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  1. R

    Dad has passed

    Dad passed peacefully Monday evening. He was diagnosed in February of this year so this was quite rapid. Thank you everyone for your support. I pray for a cure of this monster disease for all of you, add I pray for all the caregivers and families who suffer along with you. God Bless you all.
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    Hubby starting to have falls

    I suggest getting him a life line that can be worn as a bracelet or necklace. My dad wore one while he lived with us and used it one morning when he fell getting out of bed and actually got caught in the side rails. We heard the person on the speaker asking him if he needed an ambulance so we...
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    Question on hallucinating

    His lithium dose was started low, not sure how low but I was told it was very low. They did stop it this morning to see if that would help. His breathing seems good now but he has developed swallowing issues along with his voice getting weak and today for the first time I noticed he was...
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    Question on hallucinating

    Please correct me if I’m wrong but from what I’ve researched ALS does not have any effect on the mind. I ask because my Dad has been hallucinating for the past 4 or 5 days. He says he is seeing things floating around, pictures moving etc. He tells me that he is moved from his room during the...
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    My Dad: How close is death?

    Al that's quite an emotional link you provided and thank you for it. On the section about keeping a person warm with blankets when their skin is cooling I'm wondering why it says not to use electric blankets, any idea anyone.
  6. R

    strange sensation in head

    My Dad has reported strange feelings in bed but nothing like you describe. He used to say that when in bed it felt as though there were snakes in the mattress, I think he said they felt still and were not moving. That was several months ago and he hasn't mentioned it lately. Now he is...
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    Score One for Vets

    Great news, I will contact the VA soon to get details on my Dad's situation. In the interim does anyone know how this plan works, for example my Dad is in a nursing home paying out of pocket each month. His funds will eventually run out so will he be eligible for VA support now or after he...
  8. R

    Hand/Finger Swelling

    Thanks I will talk to the staff about doing range of motion tests.
  9. R

    Hand/Finger Swelling

    Dad has been living in a nursing home since early July. Lately his right hand and fingers have become very swollen and is nearly closed as in a fist. The physical therapist is supposed to place some type of brace tomorrow. He says there is no pain but if you pry the fingers open it hurts...
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    Keee ping PAL at home

    My dad has been living with us for the past several months getting around on this wheel chair pretty much on his own. We/he wants to stay here as long as possible but his body is getting weaker. He is starting to complain about having difficulty getting off the comode back on his chair. My...
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