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Re: Christians Here for Support Greetings to everyone, This is Phil, Annies husband writing on her behalf. Annie asked me to write to let you know that her weakness has progressed to the point that she can no longer type and therefore will only be reading the posts on the forum. Her arms and...

hannacat asked me this--I hope this is helpful (starting a thread for her) Hi, My husband has the bulbar form of als and I can talk about that but today our major problem is mucous. We are fortunate enough to have a Vest and a cough assist -both new to us. He has involuntary coughing and just...

An article from the NIH after one study; I thought it interesting. Bipap improves survival and rate of pulmonary func... [J Neurol Sci. 1999] - PubMed result

A family of our closest friends is having the wedding of their only child--who is thirty years old--in approximately an hour and a half. We literally were with his mother to experience her first morning sickness, and this young man is very close to both Phil and me. Two weeks ago after church...

To all you men--You are likely a Dad to someone, whether a child of your own or a fatherly help to someone else. Happy Father's Day to you!

For all who are not aware, there is a segment of this forum seen only from "ALS/MND Support Group Forums" menu...The Main Page. This is called "Off Topic", and has subgroups. There is "Other", which includes social chitchat, stories and other fun stuff, along with the Christian Support thread...

For all who are not aware, there is a segment of this forum seen only from "ALS/MND Support Group Forums" menu...The Main Page. This is called "Off Topic", and has subgroups. There is "Other", which includes social chitchat, stories and other fun stuff, along with the Christian Support thread...

Until recently I've been hoisted onto the shower chair by Phil, who then removes the sling. He has no trouble putting it back after towel drying me. The hospice aides aren't used to using lifts here within the only hospice--most patients are ambulatory with cancer, and get bedbaths when they...

I want you both to know how much you are appreciated. While we were in the dark, whining about our moderated posts, you were and still are working tirelessly trying to keep us safe... and I have an idea it wasn't very nice, reading all the complaints. Some were my own. You are the makers of...

I wondered if posting links both to blogs or to helpful items is now not allowed? I just looked and saw many links removed from posts in the "Tips, Tricks, and Gadgets" section; things I use, found helpful and wanted to share. Links I tried to add yesterday and today from blogs to the...