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  1. R

    ? on speaking devices

    Thank you,can you also hook up to internet thank you for your hslp, this would also hook up to internet so long as we had the hook up at home? Roni
  2. R

    ? on speaking devices

    I'm in Hospice where I can't get much, anyway back to my question on what type of machine to get. I heard something about getting a Laptop computer that coulr just get the software and eye gazing for it. Is it really that simple? Thanks, Roni
  3. R

    Diaphram Pacing Stimulation

    Hi guys, don't know if you have gotten any new updates or not, I can share my experience. I started the study that started last year. The one they did with 100 patients thru the USA. Dr Orders, taught some other drs. so the could over it in like 10 different areas. Henry Ford Hospital got so...
  4. R

    Need Help w/this one-message board for teens with ALS parent

    AL, thank you I had know idea that site was there. Looks good! Thank you for info, Roni
  5. R

    Need Help w/this one-message board for teens with ALS parent

    Hello again, I started a yahoo group (message board) for the teens. I also put, in for a chat room with a time, with MDA/ALS. Just waiting to here. Here is the address for the group, just need to sign up. Both my 14 year girls are after school...
  6. R

    Need Help w/this one-message board for teens with ALS parent

    Thank you I didn't even think of the group idea, excellent idea! Thank you! Going to do that one today. Will get back with you's. Thanks, Roni
  7. R

    CURE ALS shirt sizes. Advice?

    Stu what does the shirts look like I never heard of them? Sound great! Roni
  8. R

    Need Help w/this one-message board for teens with ALS parent

    Thought you guys could give me some ideas about a message board for teen kids of us pALS. Need one for us too. But, it's been challenging for my 14 year old twin girls (have a 10 year old son too). I do go to a support group (helps alot) have talked to them but, not alot of people have teen...
  9. R

    Need some help/advice, catheters etc.

    Hospice and Catheter Thanks again everyone, Been busy with all these appts. I started Hospice this past Tuesday, they are so helpful and alot of services. Today, I have an appt with the urologist. So should be feeling better later today. YA! Roni
  10. R

    Need some help/advice, catheters etc.

    Thanks, Karin Thank you, Karin! I am going to get one, have to wait till next week. Can I ask do you have a nurse come in and change that or do you have to go in to the doctor's? Thanks, Roni
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