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I have Bulbar. It started in January 2021 and by June 2021, I couldn't eat, speak or drink anymore. I was attempted to do speech therapy and exercises, but things are slowly progressing with me. Back then I could do mechanic things, build stuff, but today I can barely walk and life things only...

Losing my abilities to speak, and also backing up how we feel with real emotion tones, people just assume the wrong things all the time. Its a tough battle we all are dealing with. Now that I haven't been able to eat, speak or drink anymore for almost 2 years, I notice that almost everyone...

Yes, at times. The muscle twitching in my arms and shoulder cause massive soreness and pain. It agitates my skin at times and causes itching and feeling like small bugs are crawling on my skin in certain areas.

It is definitely my muscles and skin twitching all the time. Sometimes it feels like a bug is crawling on me. My Doctor prescribed me Baclofen, but it is not doing anything. It's part of our battle we all are going through.

I just joined. Still here. Still fighting!

Around December of 2020, I noticed my speech was starting to have issues. Also drinking anything, I was coughing as well. Primary doctor sent me to speech therapy but it was getting worse as time was going. By June 2021, it was almost impossible to pronounce words. Still strong in my body and...

All of you that can still eat, but it's some "hard work", then keep doing it as long as you can! The best thing about real food is taste. Sure I can blend a burrito and shoot it in, but what is the point? I mean I still see peoples reactions to the way things taste. I do taste things others are...

Thank you @wishmobbing Even though i was told I have very little time, I want to enjoy life with what I can do. @Nikki J - yes, I do have an awesome power chair that the AZ ALS association lent me. I use it to ride up and down my street at nights. Living in AZ, heat is awful so I wait till...

The most hardest thing is missing FOOD! Oh gosh! Food was my #1 drug back in the day. With ALS starting in my mouth area, I stopped being able to speak, eat and drink. Feeding tube is giving me life, and I really like shooting carbonated sodas and energy drinks just to burp. I do notice that my...