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  1. Elaine Ramos

    PAL forgets what happens and blames me

    Does anyone experience this? My husband has bulbar onset of ALS for 2 years now. He has a lot of pain and takes several pain killers throughout the day. He is generally himself, but sometimes he forgets what we spoke about. But he also sometimes accuses me of doing things without his...
    • Elaine Ramos
    • Thread
    • als bulbar bulbar onset clothes cry depressed health hospice onset pain sad work
    • Replies: 14
    • Forum: Current caregivers
  2. Elaine Ramos

    caregiver for husband/I have bad dreams

    Hi All, New to this forum. I feel overwhelmed with caregiving for husband diagnosed to 2 years ago with bulbar onset. He has FVC 30% and close to respiratory failure in the next few months. We've been married 16 yrs. He is 48 and I am 39. We have 2 girls, 11 and 14. He wants to get a vent...
    • Elaine Ramos
    • Thread
    • balance bulbar bulbar onset caregiver caregivers caregiving diagnosed foot fvc husband mad money onset respiratory respiratory failure vent voice wheelchair women work
    • Replies: 7
    • Forum: Current caregivers
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