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  1. M

    Hand Tremor/Clonus, Spacisty in Both Hands, Vibrations/Tingling in Feet & Fascillations in Feet/Legs & Upper Body

    Last thing I want to add why I think so many people come to this forum. It's wisdom & guidance from experts. All I am asking is based on your guys collective experience and stories (which you should be recognizing more). I think someone with a disease in their body or takes care of someone...
  2. M

    Hand Tremor/Clonus, Spacisty in Both Hands, Vibrations/Tingling in Feet & Fascillations in Feet/Legs & Upper Body

    Gotacha on the feet. My issues are on the sides of the feet and there are muscles there. I suppose they think it would show up above too. My weakness is when I spread my fingers apart and they close them and there is weakness there. So can't they emg the muscles in the hand that power the...
  3. M

    Hand Tremor/Clonus, Spacisty in Both Hands, Vibrations/Tingling in Feet & Fascillations in Feet/Legs & Upper Body

    Also why hasn't a neurologist referred me to an ALS specialist?? I took the advice and didn't mention ALS as a concern and now look where I am at (back to the drawing board). I've got classic ALS symptoms and they are not going that route. People know their bodies better than doctors. Sorry just...
  4. M

    Hand Tremor/Clonus, Spacisty in Both Hands, Vibrations/Tingling in Feet & Fascillations in Feet/Legs & Upper Body

    Based on what I've told you I'm guessing you would seek an ALS specialist now? I've had two bilateral upper arm EMGs & two lower left leg EMGs with normal results. I still don't understand why they do not EMG feet muscles or more hand muscles (thats where my symptoms are). It can usually start...
  5. M

    Hand Tremor/Clonus, Spacisty in Both Hands, Vibrations/Tingling in Feet & Fascillations in Feet/Legs & Upper Body

    So you should notice weakness coming on slowly. It's just the people who do not pay attention and finally notice when it fails and seek help. So progressive muscle weakness.
  6. M

    Hand Tremor/Clonus, Spacisty in Both Hands, Vibrations/Tingling in Feet & Fascillations in Feet/Legs & Upper Body

    I'm sorry to be back here but I am in need of an ALS specialist in Minnesota. I know people here are not going to 2nd guess doctors but just show how each one goes a different direction. I have now been diagnosed with clinical weakness (by a neurologist) in my legs and fingers. I have a...
  7. M

    Hand Tremor/Clonus, Spacisty in Both Hands, Vibrations/Tingling in Feet & Fascillations in Feet/Legs & Upper Body

    I'm not asking for a diagnoses. Just if you've seen someone else's situation similar to mine. I was asking basically two things: 1. Based on what you all have seen and experienced should I test more muscles for ALS? 2. Based on what you all have seen again - should I try and see a ALS...
  8. M

    Hand Tremor/Clonus, Spacisty in Both Hands, Vibrations/Tingling in Feet & Fascillations in Feet/Legs & Upper Body

    Hello All, I'm giving an update on my scenario. Summer 2020 - I had bad neck pain in the left side of the middle of my neck. Got an MRI done and it revealed a compressed disc (C4-C5). September 2020 - I met with a Neurosurgeon who recommended spinal fusion/discectomy of C4-C6. December...
  9. M

    Hand Tremor/Clonus, Spacisty in Both Hands, Vibrations/Tingling in Feet & Fascillations in Feet/Legs & Upper Body

    Thank you very much for the response and ideas! Greatly appreciated! No Neurologist has told me based on their strength tests that I have clinical weakness. EXCEPT the first Neurologist I saw who specializes in ALS said I have weakness in my pinky finger?
  10. M

    Hand Tremor/Clonus, Spacisty in Both Hands, Vibrations/Tingling in Feet & Fascillations in Feet/Legs & Upper Body

    Hello, I started having finger pain and tremor or clonus in my right hand 11 months ago (still there and has since gone into my left hand). Visited a respected neurologist institution in Minnesota back in July of 2021. I got an EMG performed by an outside clinic after this appointment (didn't...
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