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Thank you so much for your encouragement. I think his muscle loss has sped up over the last 6 weeks. We are not sure whether this means anything. But yes, we would rather live each day and let tomorrow take care of itself.

My husband and soulmate of 43 years has been diagnosed with ALS. I retired in 2018 and he in 2019 and we moved to our little coastal village in South Africa. Barry has always had back trouble but it was getting worse and he started walking very strangely. I would crack up laughing as I couldn't...