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Thank you, Laurie, for the clarification. Nudexta was prescribed, but I need the EKG/ECG beforehand, she stated. That has been ordered.

Firstly, I tried to continue my previous thread, but unfortunately, it stated it had closed, and was not open for further discussion. I was also not sure of the appropriate forum, for this post. After a year of pure craziness, I was finally given a diagnosis, but I am completely confused. My...

Your symptoms are exactly like mine. Feel free to reach out. I know what hell this is.

Ahh okay, thank you. I also forget to mention, I did have significant testing, to rule out mimics. Everything has been negative. Unfortunately 😞

Hi, Nikki- thanks for your response. Excuse my ignorance, but what is frs? Thanks for clarifying. I have abnormal clinical findings, and documented symptoms, but nothing else, as of yet. I’ll just continue to try and take care of myself, and live life, in the meantime!

Hi, all! Still in this crazy diagnostic limbo. Had a question in regards to such. My neurologist has stated due to my ‘clean’ EMGs and only a score of 46 out of 48?, it’s a wait and see approach. She stated I am unable to accumulate points for palate and nasal weakness, and only for speech...

Thank you, I will message her. Or maybe I’ll just take a mental break and do some meditating over the next week or so. These last five months have been a wild ride, and the stress has been overwhelming. I am certainly not getting better, and progressing whatever this may be, but I have been on...

Hi, Nikki- She said PROGRESSIVE Bulbar Palsy. I asked her to repeat. I even stated that I had come across that and read about it, and her response was, yeah.. I am sorry, but no diagnosis I give you, is going to be a welcoming one. I am so confused. Wouldn’t that have been picked up on the EMG?

I am literally just as confused!! My neurologist could not perform the EMG- one of her colleagues did. He stated everything was normal, and I will hear from Dr. Meyer. She called me late afternoon, and was going over some things. She noted, my hoarse/raspy voice along with my slurring, which...

Well today, I had my 3rd EMG, since March. EMG sampling of selected muscles of the left proximal and distal arm, left sternal mastoid, right genioglossus left corrugator, orbicularis oculi and orbicularis oris was normal. No acute denervation, abnormal activations, myokymia or myotonia was...