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  1. O

    Relyvrio improvements anyone?

    Hi all, I know it might be too early to ask, but have any of you slow/slower progressors see any improvements using Albrioza or Edavarone yet? I was suggested to start one for my ALS-like MND. I will be meeting with ALS clinic soon but wanted to hear some firsthand experiences also. thanks!
  2. O

    ECG

    Hi, Quick question. Did any of you had issues completing ECG because of the tense muscles where machine could not get a reading? Thank you!
  3. O

    AR ALS/MND

    My 8 months EMG repeat is in 2 months to evaluate my ALS/MND. Recently I've completed videofluroscopy that showed dysphagia severity 3 with tongue fasciculations not previously seen 6 months ago by neuro. My recent chest CT showed mild right lower lobe bronchiectasis due to chronic aspiration...
  4. O

    Legs weakness

    Dear fellows, I appear to have diagnosis of a slow progressing ALS. I am still ambulatory with some swallowing and light breathing symptoms, as well as gastroperises and an increase twitching throughout my body. I however have questions about my legs weakness. Do any of you experience extreme...
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