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  1. HopefulMoogle

    I'm following your progress via your profile. Thank you for the updates. Is your neuro still...

    I'm following your progress via your profile. Thank you for the updates. Is your neuro still ruling out als?
  2. HopefulMoogle

    In terms of the swallowing, I also see that commonly on the bfs forums-- myself included...

    In terms of the swallowing, I also see that commonly on the bfs forums-- myself included. However, mine is more to do with gerd and so forth. But, with ALS, the swallowing thing has more to do with liquids is my understand and not solids. I don't know man, right now, I still think what you're...
  3. HopefulMoogle

    If you can move them, that's good sign. It's not like they are in complete failure. What's odd...

    If you can move them, that's good sign. It's not like they are in complete failure. What's odd to me is that you had the emg. I'd imagine that if your toes were due to ALS, the issue would have shown distally. I'd just have to think your toes are probably just stiff and so forth-- that's...
  4. HopefulMoogle

    I apologize for asking here. But, I am in need of advice and experience to articulate my next appointment.

    Thank you for the clarification, Janders. Sincerely. Either way, my heart, prayers, and well wishes are being directed towards your family-- and frankly everyone, for that matter.
  5. HopefulMoogle

    Saw your newest post. Sorry that it's still going on for you, brother. When you say you can't...

    Saw your newest post. Sorry that it's still going on for you, brother. When you say you can't move your toes, can you literally not move your toes or just not move them well? Personally, I'd stabilize the toe by holding the join and try to press down with the toe. Should give you a decent idea...
  6. HopefulMoogle

    I apologize for asking here. But, I am in need of advice and experience to articulate my next appointment.

    Thank you for the response. Yeah, unfortunately I have developed pain down my leg, cramping and stiffness, and random spasms. They went ahead and did another mri of my lower spine-- have a bulging disc and it was possibly torn at some point. Moreover, they put me on 300mg x3day gabapentin. If I...
  7. HopefulMoogle

    I apologize for asking here. But, I am in need of advice and experience to articulate my next appointment.

    "you are obsessing about a random remark." Point taken. Wasn't my intent. Not really an obsessive remark, was meant more to be like a possible memory refresher to someone else's story. Side note, I've been trying to do what you all do here insofar as, since I am currently DX'ed with cfs-- I've...
  8. HopefulMoogle

    I apologize for asking here. But, I am in need of advice and experience to articulate my next appointment.

    Wanted to update this post and also ask you about something you had mentioned previously. I met with the specialist at the als clinic. Effectively, this person told me that they generally agreed with the cfs diagnosis, but that she wouldn't rule out als until a year had passed. Said that the...
  9. HopefulMoogle

    Well, how did your EMG go? I've been waiting for the good news.

    Well, how did your EMG go? I've been waiting for the good news.
  10. HopefulMoogle

    When you say bouncing while walking, have you done a clonus test on yourself? Or, did the doctor...

    When you say bouncing while walking, have you done a clonus test on yourself? Or, did the doctor check your for clonus? Check out a video on ankle clonus. It's easy enough to do; however, just recall that some clonus is normal. Honestly, it's not a good idea to try and test yourself, if you...
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