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  1. G

    ceiling hoist vs mobile hoists and tiles vs vinyl flooring for renovations

    Hi, I'm keen to get views on ceiling hoists vs mobile hoists as we are about to do renovations and if we want a ceiling hoist in the future we should prepare for it now with the ceiling being redone anyway. Our bedroom is next door to the bathroom but you will need to go out one door and in...
  2. G

    Riding South Island NZ on a three-wheeler in early stages MND

    I was diagnosed in March 2022 and am relatively slow progressing. However, I can no longer ride a regular bike as I am scared I will fall off and my muscles are too weak. So I am riding as many of the Great Rides of New Zealand as I can on my electric three-wheeler with pedals and raising...
  3. G

    Resource lift options please including for stairs

    We have a multilevel house - stairs from the garage for the car to the first level where there is a landing and fairly small bedrooms and a bathroom. A new staircase from there has 5 more stairs to our bedroom then 12 more stairs including a 180 degree turn to the upstairs living area. If we put...
  4. G

    Physiotherapy in early stages?

    Hiya, I am still mobile but feet are getting weaker. Diagnosed 6 months ago. I've heard using a physiotherapist regularly can be beneficial but my neurologist seems to think not. Can anyone tell me what benefit a physiotherapist was in the earlier stages, eg maintaining or even regaining a...
  5. G

    3 wheel electric tandem trike

    Hi, wondering if anyone has some suggestions for a 3 wheel electric tandem bike. My husband and I biked on manual bikes 30-50km most weekends but now I am too worried I would fall off and won't manage the hills or the distance any more. I've heard about the tandem electric 3 wheeled bikes and...
  6. G

    type 1 diabetes (or LADA) and ALS

    Is there anyone else on this group who has type 1 diabetes or LADA and ALS? I was diagnosed with diabetes 4 years ago and now newly diagnosed with ALS. Not looking forward to the challenges of managing diabetes when my hands lose function. Keen to know how others have got on.
  7. G

    Skiing

    Hi, newly diagnosed 3 weeks ago, but strongly suspected MND for 5 months prior. Arm weakness started over 2 years ago and looking back hand weakness and balancing issues were clear in June 2020 when I started a new job and found it a bit difficult to put on eye make up and balance putting on...
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