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Laurie, Thank you so much for sharing your story. Having a poorly understood CTD isn’t something everyone can relate to, or understand the myriad ways in which they can manifest themselves over time. Your words have given me reassurance, and I hope that testing can confirm that. The...

Nikki, thank you for answering! I see that about my first post looking back, sorry. Thank you also for answering my question about whether or not you actually felt the weakness prior to the failure, that is the thing that has been cycling through my brain nonstop. I read a number of threads, but...

I can totally see why my original post would have not gotten a response - why bother? That said, my symptoms are really starting to freak me out. The tingling has spread through everywhere but my torso. Gabapentin helps, but my hands continue to feel clumsier and sort of spastic (muscle...

Hello, and thank you for your precious time! I’ll try to keep this short and clear as I can. I’ll preface this with I am waiting for an EMG appt, and understand that would be definitive to some extent. I also have a connective tissue disorder called Ehlers Danlos Syndrome that causes weird...