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hey all. havent logged on since march. ive had pls for 4 yrs. cant walk, talk, write, practically a quad. ive seen people w/varying degrees of pls but none seem to progress as fast. fell out of whlchair last wk and shattered 4 front teeth! i know its not fatal but more falls like that will...

college & ss/d pmnts i think they can get pmts until 25yrs old if theyre f/t students...16hrs/semester? ss/d office will know...really need to get there asap...you may be leaving money on the table. good news is theyll reimberse past monies when you were acctually deemed "disabled". irony...

whistend,geo,olly-i was really surprised too with how simple the process was. go ahead spend it-they wont deny you later...if anyone has kids theyll get pmts too. olly it makes me mad too. i dont know how it is in the u.k. but loopholes, red tape and inefficiencies abound here. by the way i...

im 41 and was "separated" from my job in 2003. i know a person who works in the SS/disability offices. one of the disease categories that gets processed without question is progressive mnd's e.g. pls and als. go to your local ss office asap! bring all you dr. records and prognosis. its your...

hey jim...exersise will not cause pls/als to progress any faster but, do not do any weight bearing exersise-only range of motion and stretching. i used to do triathalons - so i know how hard it is to give up exersise, but youll find if you lift weights or over exert yourself (as i did when i...

this is my 1st day on this site too. dont freak out about the uncertainty...it is as it is. it will take about 4 yrs. before they rule out als. i went to columbia univ. in nyc to try and get a definite answer. but they confirmed what the others did...it was pls or mnd-in europe they dont...

BED REST...finally! sorry if these ideas seem basic but they have really improved my QOL. 1. wear anything that is microfiber-underwear & t-shirts...they usually have some spandex in them. Jockey has a brand called LIFE. or calvin klein - theyre great but $$$. you want clothes (to sleep...

thanks. DX? = diagnosis?

im new to any support group re: pls and dont know how to start, but ive been diagnossed since 2003, im now 41 yrs old, maried, 2 kids, college grad, was athletic and handy around the hse, but now cannot walk or talk. i have a lot of tips for dealing with mobility (especially the sleeping issues...