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So sorry this is happening while you are in the states. My PALS has just been transferred to a local rehab hospital after a week at the hospital with pneumonia. The suction tube really helps. Praying you will get back home asap and that the insurance will see it your way. Take care.

I agree with the suggestions but here's another take on it: We shared a queen bed for 60 years, but I am such a light sleeper, that I might not survive sleeping in the same room when my pals has to sleep sitting up. I am next door and we have our phones beside us. Also, I have hired a...

Thanks for posting this, Tom's Wife. I would like to ask caregiver questions, but don't know how to initiate a conversation....only to respond. Could someone please enlighten me?

My husband did not want the port, but the swallow study showed that food was seeping into his lungs. This is really a life saver and I agree that earlier is better. A port is very easy to use. Kate Farms is the product we use. We had to tweak the process so he didn't feel stuffed, but after...

I agree that he should write out his wishes. Otherwise he may have no control over what happens. My PALS is on a blood thinner due to prior strokes, so falling with his walker became dangerous, even though he still rides his trike and transfers from chair to chair. It's been important for us...

Welcome, JodiR. You will find wonderful support from this forum. We also are snowbirds from WA to AZ. The AZ Clinic s happy to care for us year around via their portal, though it has helped to stay in close touch with someone local. in WA..in our case the primary doc, since the portal route...

Wow. Kashley! My heart goes out to you and your dad. If your mom is enrolled in a clinic, their social workers might help you find the answers you need. If not, Hospice is a huge help; they sends a nurse each week, who could help you with stratigies they have learned. Medicare covers many...

I AM SORRY YOU ARE RECEIVING THIS DIAGNOSIS. MY HUSBAND'S FEEET SWELL AND HURT AT NIGHT. ELEVATING HELPS. YOU WILL GET LOTS OF HELP AND SUPPORT FROM THIS GROUP.

Is medicare available to you? My husband and I just met with the rep from tobii dynavox, which his speech therapist highly recommended. His enthusiasm for using the free text to speech. apps on his iPad has been poor, in part because I can often still understand him. His speech therapist...

Hello Lee: I am very sorry you and your wife (and family) are having to undergo this process of resting, testing and waiting. That seems to be how this begins, but I hope in the end, you find it is not a degenerative disease. I think what helped us through the diagnosis was staying active and...