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  1. T

    ALS Diagnosis confirmed 3/2023

    ALS Diagnosis confirmed 3/2023
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  2. T

    Haven’t read the full report, didn’t ask them for it, I dont care to look at it. I’ll just stare...

    Haven’t read the full report, didn’t ask them for it, I dont care to look at it. I’ll just stare at it all day reminding myself that I have als. Just asked the neuro for details after he did it. Something along the lines of “the chronic denevervation has shown for 14 months now. This incomplete...
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  3. T

    Hello. Yes I’ve seen a few new nuerologist now. I’ve quickly gone from possible to probable. The...

    Hello. Yes I’ve seen a few new nuerologist now. I’ve quickly gone from possible to probable. The only reason they don’t want to label me definitive at the moment is because my EMG “didn’t show enough nerve damage in my legs yet.” I was told to expect to be formally diagnosed later this year.
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  4. T

    Very Dirty EMG (pics attached). Scared With No Answers.

    I’m sure I’ll get banned for this but I have no where to turn. Family won’t talk to me. My wife left with my kid. Never really had friends so this is my only hope. Today I noticed that if I flick my left FDI muscle or tap it hard, it will induce the twitching in that area. That’s where my...
  5. T

    Very Dirty EMG (pics attached). Scared With No Answers.

    First things first. I wanna start this follow up by saying thanks a million to the PALS and CALS who take the time to respond to this DIHALS forum. The work you all do here to help health anxiety sufferers cannot be overstated. I had another EMG with a neurologist who diagnoses als this past...
  6. T

    Very Dirty EMG (pics attached). Scared With No Answers.

    Just wanted to provide an update. Was not happy about lack of communication from previous neurologist so I ended up seeing a new one this past Monday to maybe get some more answers about my EMG. To my surprise he explained he was one top MND specialists in the area and usually has the final say...
  7. T

    Very Dirty EMG (pics attached). Scared With No Answers.

    I’ve also started twitching on my left FDI muscle (where my EMG was dirty). I am beyond scared and don’t know what to do. sorry for bugging everyone I am just beside myself with fear.
  8. T

    Very Dirty EMG (pics attached). Scared With No Answers.

    Hello All. First I want to say thank you so much for taking time to read this post. 31 year old male. Software Developer. It all started with muscle twitches all over my body in early December 2021. I went down the google rabbit hole and became insanely scared. I suffer from diagnosed OCD and...
  9. Screen Shot 2022-01-28 at 2.06.54 PM.png

    Screen Shot 2022-01-28 at 2.06.54 PM.png

    • Tag90
    • Media item
    • Comments: 0
    • Category: Could this be ALS?
  10. Screen Shot 2022-01-28 at 2.07.10 PM.png

    Screen Shot 2022-01-28 at 2.07.10 PM.png

    • Tag90
    • Media item
    • Comments: 0
    • Category: Could this be ALS?
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