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My brother has lost so much muscle functioning and continues to have so much pain that he is now bed bound lying on his stomach. He has lost leg muscles, back and stomach muscles and shoulder muscles. He can still use his hands and forearms some and can move his neck. He can still talk, eat...

I am wondering how the doctors can tell that you don't have CDIP vs ALS? Thanks, Tara

My brother has a weird bulge feeling in between his shoulders. He has recently been feeling a surge of pain down his spine that shoots into his legs. He has progressive muscular atrophy and can no longer walk or stand. His shoulder muscles are weak but he still has good use of his hands. He...

My brother was seen at the ALS clinic last week and they decided that they needed to do more blood tests and to do another EMG. The new EMG is scheduled for tomorrow. He seems to be loosing muscle quickly. In May his Respiratory function was 107% of expected. Last week it was down to 81 % of...

My brother saw another muscle disease specialist and this doctor reports that he has progressive motor neuronpathy......but ALS cannot be excluded. He said the biopsy showed signs of nerve pathology not muscle pathology. He also said that "sparing of the left quadriceps reflexes suggests there...

My brother had his first visit to the "multidisciplinary" ALS clinic yesterday. There was no Physical therapist, No Occupational therapist AND no Social Worker. Just a rude nurse, a doctor who offered nothing and a Respiratory Therapist who took a baseline reading of his breathing functions...

My brother is big guy and his legs appear to be going first. What kind of help is available to help transfer him from bed to a wheel chair if we are unable to lift him? I am also wondering how we will transfer him to use the toilet. He has Medicare and Medi-Cal. What kind of help do they...

My brothers first visit at the ALS clinic is tomorrow. We would appreciate any insight into preparing for the appointment. What should we expect? What questions should we ask? Is there anything we should bring with us? Thanks for any help you can offer. Tara

My brother keeps talking about a tight lump in his back that causes his "back to go out". Not really painful but sends weird feelings up and down his body. This can sometimes be painful but only when real intense. He thinks it is a pinched nerve. I am wondering if this may be related to his...

My brother keeps talking about a tight lump in his back that causes his back to go out. He thinks it is a pinched nerve. I am wondering if this may be related to his ALS diagnosed or if it is something else? He reports he can not sit for very long....and says that he feels better if he walks...