As soon as we became nervous about transferring from chair to bed, we started using the hoyer lift for my husband Don. That immediately took away all stress of falling.
Hello Dina.
My husband was also diagnosed with limb onset. The only time he has suffered with his feet swelling, was from his blood pressure medication. Do the doctor switched it up and he hasn’t had any swelling since.
Just a thought.
Isn’t it difficult enough to have ALS, or watch your partner or family member live with it, let alone having to deal with the cost of a drug and the paperwork?
Can someone share if they have seen/ felt benefits of the radicava over riluzole?
Wishmobbing- all so very true. Your “rambling” response needs to be heard.
As the primary/only caregiver myself, I feel all aspects of what you have written.
My husband was diagnosed in our 25th year of marriage in 2018. We had plans. Then with this diagnosis, those plans just stopped...