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Hello everyone, I haven’t been around very much. There was such a flurry of activity happening early in my husband’s diagnosis and all of you were such a big help to me. Reading these boards and finding info I needed to help my husband was a blessing. As it is, my husband is in end stage and...

Thank you again for your replies. I also get tired of the “He’s doing great!” from all the caregivers. Um. I don’t feel like he’s doing great. He was able to shower and dress himself as short of time ago as late October. Now he can barely lift his arms high enough for me to put deodorant...

Thank you for all of your replies and support. Looking at it now, I agree - I think the doctor did think it was a second opinion consult. Which we hadn’t asked for and had never been consulted about. I think Steve is so far progressed that there’s really no doubt in our minds. Actually, we...

We had our first appointment at an ALS Clinic in Seattle yesterday and quite frankly, I was really disappointed. We came out of there with more questions than answers. The doctor was very nice but between her very soft voice, a mask and a full plastic face visor, we had a difficult time...

Just wanted to thank you all for your replies. It is much appreciated! We will be going to the Virginia Mason ALS clinic. I’m hoping they will be more proactive on what to do for him. And give us some ideas of how to make Steve’s life more enjoyable.

Thank you so much for your message. I’m so glad to have found these forums. In one way it’s nice to read others’ stories and know I’m not alone. But on the other hand, I feel terribly depressed that anyone has to go through this.

Hi there, this will be long and I apologize for that but I thought I would introduce myself. I’m Chelle and my husband, Steve, age 53, was diagnosed with ALS in early November. Looking back, we‘re pretty sure symptoms started back in 2017. Why didn’t we go into a doctor sooner? Because my...