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I was diagnosed with limb onset ALS at the age of 52. My mother was diagnosed with Parkinson in her late 60s. Since there was no known ALS family history, I never had any interest in genetic counseling. Recently I watched the Les Turner webinar on genetic testing where it was recommended for all...

Hello. I had been on fmla during the end of 2023 and then officially retired in January 2024 at the age of 54 at which I started to receive LTD. LTD had me apply for ssdi. I was approved for ssdi and recently received notice that I was approved for Medicare. My husband added me to his Kaiser...

I was blind sided and was diagnosed on 11/1/21 with ALS. It started in Fall of 2020 with what I thought was carpal tunnel. My symptoms seemed to improve with splints and rest. Then during July 2021, I started to notice right hand weakness, especially in my pincers. I was seen by a neurologist in...