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    My father was rushed to the hospital

    Hi, my father was diagnosed with probable ALS in October 2021 - this diagnosis was later confirmed. He has been on Riluzole since October 2021. He has lost complete mobility in upper limbs and has been having breathing, swallowing and speaking problems (among other issues) for quite a few...
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    Tonabersat

    I came across an article discussing a recent Johns Hopkins study (29 March 2022) - Potential window for treating ALS identified and Cx43 hemichannels contribute to astrocyte-mediated toxicity in sporadic and familial ALS which talks about Tonabersat being a prospective drug for ALS. On a little...
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    EMG abnormal | MND being considered | long waiting period

    Hi, I am from India and my father (aged 48) started experiencing difficulty in lifting things this Feb/March 2021. This difficulty in doing normal things like buttoning, opening wrappers, signing, writing, combing, etc. kept on increasing gradually. Starting from August/September, we noticed a...
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