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    ILB

    Dear All. Do you happen to know about the "Right to Try" law? ILB is dextran sulphate, It's a patented, low-mol. weight form.of DSS and the clinical dosage is LMW-DS, approx. 20 % sulfate, mean MW 5 kDa [edited for accuracy; the trial you linked to is complete but is now linked to its NIH...
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    ILB

    Are you going to write to TikoMed?
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    Pollen problems

    Sorry to complain...but, here goes: Pollen! Embraced and romped in it in the before-times, now it generates windpipe-clogging goop that is only pried out on dribs and drabs. Am trapped inside, looking out at the green and breezy world. A mask suffocates. Any suggestions?
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    PALS ROLL CALL NEW THREAD (PALS ONLY) [Wednesday or whenever]

    Checking in on a Wednesday. Returned from trip to N. Spain for crashing surf and orange blossoms in Cantabria and Goya at the Prado (I look increasingly like his tormented ghouls in the Black Paintings). The trip trounced me. Now nearly summer in Asheville. Sketching the green and leafy view...
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    saliva

    Atropine?
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    Aminophylline

    Has anyone tried aminophylline to improve SOB?
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    Is anyone doing neck exercises?

    Thank you, MarineChief! Will do! Snow angels: they feel good and they're up-beat. I saw one woman who recommended lying on the floor and rolling like a rolling pin.
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    Is anyone doing neck exercises?

    Is anyone doing neck exercises to stretch and possibly strengthen? How's it going?
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    Bulbar ALS - what will death look like?

    I said I'd rather starve than get a feeding tube - even the words are horrible, but now we call it a Nutrition Transport Line, which is a little better. Before it, I had been choking to weeping exhaustion and blue lips staggering to the Cough Assist every dinner.
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