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    Traveling with my ResMed Astral 150

    My Avaps, the Astral 150, is of the vintage 2018. That is an important detail, the internal battery is defective; it beeps consistently when not connected to electric. This has been authenticated by the Director of Quality Assurance at ResMed in a public email; sent to us December 2023. Our DME...
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    Tiredness

    Hello All. As my ALS has progressed, I am becoming very weak and every activity, no matter how menial, winds me so the exhaustion level just increases. I am not talking about a walk around the block but just between rooms in the house. I spend my days sitting in my recliners and wheelchair...
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    Earthing - Grounding

    wondering if anyone has benefited from the use of grounding mats or grounding products. It is generally used to deal with inflammatory issues or overuse conditions. Within the context of the book, the author lists ALS as a disease that can benefit from earthing. I have a friend that is looking...
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    Fasciculations are becoming ‘painful’

    I am a bit surprised that my fasciculations are becoming painful. They might be a 3 or 4 on the pain scale, sometimes it can cause a gasp due to the surprising cramp that can persist for a minute or more. The standard twitching is just annoying. Is this pain an expected part of the...
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    Weight Loss not happening yet

    I have had many of the ALS clinicians share with me that I should relish the fact that I am eating in the same pattern and gaining weight. I have been a fairly active senior citizen that loved long bike rides, etc. I have given that up since my diagnosis 6 months ago. Yes, I am far more...
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    Power Wheelchair Approval

    I was recently diagnosed with ALS, Dec 2021. At this point in time my mobility is fairly decent - use a walker only if I am going to be out for 20 minutes or more. I am scheduled for a WC assessment this month to start the process - knowing that there is as much as a 6 month lead time for...
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    Diagnosis steps

    I was recently seen by my neurologist who setup an appointment to “rule out” ALS. One week later, the department care coordinator changed the appointment to include interviews and assessments by the department chair, a social worker, and PT AND OT specialists. My current symptoms include...
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