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    Traveling with my ResMed Astral 150

    I now have a replacement Astral 150 with a functional internal battery. Yay!
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    Tiredness

    I admire each and every one of you that has replied. You have been dealing with this longer than me. my daily goal anymore is to be emotionally and spiritually strong. That is the best I can muster. Praying for the end. (he has caused us to be born again to a living hope through the...
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    Traveling with my ResMed Astral 150

    My Avaps, the Astral 150, is of the vintage 2018. That is an important detail, the internal battery is defective; it beeps consistently when not connected to electric. This has been authenticated by the Director of Quality Assurance at ResMed in a public email; sent to us December 2023. Our DME...
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    Tiredness

    Regarding the exercise, I am now down to range of motion done by my wife. I do use the walker to get around the house. I was not given the Use it or lose it, but instead don’t overdo. Thanks for the responses.
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    Tiredness

    Hello All. As my ALS has progressed, I am becoming very weak and every activity, no matter how menial, winds me so the exhaustion level just increases. I am not talking about a walk around the block but just between rooms in the house. I spend my days sitting in my recliners and wheelchair...
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    Earthing - Grounding

    Certainly ocean beach time would be great. But I live in MN, where the snow is still melting. 😏 My meditation is generally done as I read my Bible. I will check out what guided imagery is. Thanks
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    Earthing - Grounding

    wondering if anyone has benefited from the use of grounding mats or grounding products. It is generally used to deal with inflammatory issues or overuse conditions. Within the context of the book, the author lists ALS as a disease that can benefit from earthing. I have a friend that is looking...
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    Fasciculations are becoming ‘painful’

    Yes. It can be in my arm, my rib cage, and my abdominal muscles.
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    Fasciculations are becoming ‘painful’

    I am a bit surprised that my fasciculations are becoming painful. They might be a 3 or 4 on the pain scale, sometimes it can cause a gasp due to the surprising cramp that can persist for a minute or more. The standard twitching is just annoying. Is this pain an expected part of the...
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    The selling of Jesus....

    Yes God’s Grace is so very sufficient. That is the decal I recently put on one of my wheelchair fenders. And that certainly preaches clearly.
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