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  1. S

    Radiation for saliva

    I had two sets of Botox for my uncontollabe Saliva. It gave me thick sticky saliva. has anybody done radiation for saliva? if so would you recommend it?
  2. S

    progression

    i feel like i am progressing fast 55 and was diagnosed with bulbar onset in october At that time everyone could understand me and i could eat most foods February i went to Arizona,,was still eating but slower and less people could understand me, did a lot of walking and hiking with no...
  3. S

    atropine drops

    i use atropine drops for excess saliva. I put the drops under my tongue . Sometimes the work and sometimes they don't. Am i missing something?
  4. S

    saliva

    I use atropine drops for saliva. i am traveling and my bottle seems to have grown legs and walked away. Is there anything over the counter that helps with saliva?
  5. S

    speech

    so i can still talk but only a few friends i talk to regularly can understand me. I live alone in an apartment and have a dog. i run into other dog owners and sometimes the speak. I have an text to speech app but usually they are not close enough for me to use it (because of dogs) i try...
  6. S

    questions gravity feeding

    i got a PEG feeding tube in on Friday. Doing my first feeding right now Jevity by gravity. Two containers in the bag, supposed to do 7 total. i can still eat but it isn't easy, i don't choke it just takes forever because it i difficult to move food around my mouth. I had a home health worker...
  7. S

    Bipap Question

    i started using a bipap a couple weeks ago. It is a resmed aircurve 20. i have the humidity set at the highest setting which is great for my nose but i wake up after about 3 hours with my mouth so dry it hurts. I haven't been able to use the drying drops at all because then it is worse...
  8. S

    update and question

    Moved from my third floor apartment to a first floor one. While not handicapped it should work for me for a while as my legs are strong. Eating had gotten tougher but i can still do it. Getting a feeding tube the end of the month. Might have to stop taking Riluzole, blood work shows some...
  9. S

    Bulbar onset

    New, overwhelmed. Diagnosis confirmed with second opinion this past Tuesday. Started rilutek yesterday. no known side effects right now. The doctor who initially diagnosed me and will be treating me also mentioned Radicava. The doctor who gave me the second opinion said she wasn't impressed...
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