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  • Users: Ann P
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  1. A

    Follow-up to earlier thread

    Hope its okay to post the update under a new thread, since the original was some time ago and closed: Relatively stable condition now worsening with fasciculations appearing Very briefly, experienced various neurological symptoms that came to include fasciculations. After more than a year...
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    Relatively stable condition now worsening with fasciculations appearing

    Once again Nikki you made the day better. I called the Neuro Center and spoke to the Office Manager who repeated that neuro changes are only possible after the former and potential incoming new neuro consult with each other and agree. Not going to happen. The Center is overwhelmed and...
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    Relatively stable condition now worsening with fasciculations appearing

    Hope it's okay to send another post which, by definition, suggests it be read, taking time. I located a Facebook neuropathy group that appears to have good 'best practice' suggestions but I'm not sure I've totally graduated to it. Some I identify with but I don't want to self-define based on...
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    Relatively stable condition now worsening with fasciculations appearing

    Hello community, Thanks to Nikki's encouragement I saw the neurologist and had the NCS and EMG. (In the intervening period, the left leg became more symptomatic than the right.) The EMG was once again (compared to April 2021) completely normal. The Sensory NCS was not, with sensory axonal...
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    Relatively stable condition now worsening with fasciculations appearing

    Thank you, Nikki. I'll go ahead and get this scheduled with the original neuro. It will only be 2 weeks, after a 4 month wait to see him. Not talking to anyone about the issue, I can't tell you how helpful it is just to receive input. Encouragement to put my big girl panties on and get it...
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    Relatively stable condition now worsening with fasciculations appearing

    Hello all. I’m a female, now age 70. I hope its okay to post an update after two years. My previous thread is here (brief summary below): https://www.alsforums.com/community/threads/a-first-time-poster-who-does-not-have-fasciculations-but-now-clinical-weakness.49234/#post-501771 The...
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    A first time poster who does not have fasciculations but now clinical weakness

    Thank you for your kindness. That first reply echoed by another poster HELPED. I'm no longer thinking of ALS. And won't pursue the evaluation. About the radiculopathy, I was being pessimistic about getting a simple answer at the next neuro appointment. Radiologists do misread MRIs, with...
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    A first time poster who does not have fasciculations but now clinical weakness

    Thank you, Laurie, for reading and for your reply. Like you, I’m not concerned about the “foot drop.” I had noticed my right foot catching months ago but its improved. The second neurologist hypothesized 3 scenarios: (1) now-resolved knee pain leading to a sensory nerve response resulting...
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    A first time poster who does not have fasciculations but now clinical weakness

    Hello community, Thank you for your kindness in reaching out to help. Believe me, it’s very much appreciated. In contrast to an episode of fasciculations about 20 years ago that eventually disappeared (with a normal EMG + NCS), this time I have NO fasciculations - that I can see or feel...
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