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Question on BIPAP: my aunt (PALS) was told that she couldn’t adjust the settings on her BIPAP, that they were set by her doctor and couldn’t be changed. That doesn’t seem right based on other threads I’ve read here. Is it perfectly reasonable for us to challenge the doctor on this and insist on...

Laurie, Thank you so much for taking the time to offer this much-appreciated advice. I agree that hydration/nourishment are acute needs. My aunt actually went to the hospital this morning due to low blood pressure (her part-time home health aid called an ambulance) and is getting IV fluids...

Hi everyone. My PALS is recently diagnosed with Bulbar ALS. She is 79 and lives alone. I’m her niece and live out of state. Her two children live closer but cannot live with her to take care of her. My PALS has been unable to eat more than a couple bites of food a day for over 6 weeks. She is...