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  1. S

    Bipap Question

    Jimi, I have been using tape for the last 3 nights. Working great. Thanks
  2. S

    Bipap Question

    Jimi, is the tape you use 3m 1535-2?
  3. S

    Bipap Question

    Jimi, do you wear a full face mask
  4. S

    Bipap Question

    Jimi,how do you apply tape. .
  5. S

    Edaravone study

    K have b we en taking for about 18 months, and I can walk too
  6. S

    PALS ROLL CALL NEW THREAD (PALS ONLY) [Wednesday or whenever]

    I Am doing good. GA family over for new yrs day . We had close to30. It was a blessed day
  7. S

    Trilogy and diaphragm strengthening: Myth?

    Early on, I used just to purge CO2 buildup. Usually an hour or so initially.when I would take it offe, I felt fresher
  8. S

    Doctors suggested my dad to get a PEG

    I have a leg tube. For awhile I still ate by mouth but pills wear thru tube. No am totally on tube. It was nicer getting it early on, because, I could inch my on tube.
  9. S

    Trouble getting radicava

    I was diagnosed in April 2020. My first infusion didn’t happen until. That August
  10. S

    Interview request Maastricht University

    I have bulbar ALS. I can still walk. I was diagnosed in April of 2020. I'd like to I intervwed. My wife would interprete for me. Lol
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