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  1. W

    New symptoms that have me extremely worried

    Yes I will. I can't say that I have "zero" worry but I recognize that there are many things that would be extremely highly atypical for ALS I will post when I have a confirmed diagnosis and thanks again to all of you
  2. W

    New symptoms that have me extremely worried

    Thanks a lot to all of you taking your time to help worried people. I am just posting an update to track how I am doing. I was doing much better, still twitching but seemed to be decreasing and feeling less worried. I went on a vacation and was hiking and carrying luggage and felt fine. So...
  3. W

    New symptoms that have me extremely worried

    > Does it seem reasonable that the twitching muscles that were done were healthy but the one that was not done is not? It seems.. I guess possible but unlikely. It seems like health anxiety driven reasoning trying to find a scenario where things are bad A question on that though, I understand...
  4. W

    New symptoms that have me extremely worried

    Hi I just wanted to follow up again You can see attached the report from the neuromucular consultation which clearly seems to be reassuring My concern is that some things seem to be changing since I had that EMG about 5-6 weeks ago. Specifically the fasciculations which were totally constant...
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    244509364_1046513569494030_2418637889724416596_n.jpg

  6. W

    New symptoms that have me extremely worried

    Yes there are thousands of people! On reddit, on facebook. All terrified and convinced that they are the one who has *** (which is what they type in place of ALS) I am previously not someone who really had any health anxiety. But this has really affected me Have to try to get my head right...
  7. W

    New symptoms that have me extremely worried

    So I did the EMG yesterday. Nikki as you requested I wanted to let people know the results The neurologist/EMGer I saw yesterday did a very thorough exam and didn't find any abnormalities They did nerve conduction studies and EMG and checked several muscles in each leg and one muscle...
  8. W

    New symptoms that have me extremely worried

    Thank you very much for your help. I mean no disrespect to anyone suffering with this horrible disease or to their families. My dad had indeed seen thousands of people with ALS and he thinks my presentation would be highly unusual but he has seen (a handful of) people present before with only...
  9. W

    New symptoms that have me extremely worried

    Yes thank you for the response Nikki. I am actually (I think) a reasonable person and I know that what you say totally makes sense but I can't shake this bad feeling!! If someone else told me the same thing I wrote I am sure I would tell them it is ridiculous Maybe there's the problem, maybe I...
  10. W

    New symptoms that have me extremely worried

    Hi I appreciate that this forum is monitored by all of the pALS and cALS and express my absolute greatest sympathy to all of you and greatest wishes that better treatments are found and soon I have been having some symptoms for a few weeks that are really panicing me I am a totally healthy 37...
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