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  1. C

    Concerned and Testing EMG/MRI Next Week

    So I was diagnosed with Bulbar Onset ALS after all of the testing. I have taken a month to process it, we bumped up our wedding from May to October 27th (3 weeks). I have an appointment with another neurologist who specializes in ALS here in Denver on November 1st. I'm sure I'll be back soon...
  2. C

    Concerned and Testing EMG/MRI Next Week

    So the spinal tap came back fairly unremarkable so far (I'm still awaiting some of the results). WBC and RBC were normal, I had borderline elevated proteins and that is it so far. I am in contact with Mayo Clinic to see an infectious disease specialist (among others), still praying for a good...
  3. C

    Concerned and Testing EMG/MRI Next Week

    Attached are the EMG results. My hope has dwindled pretty far into it being anything other than a MND. I'm hoping the spinal tap reveals something, but am realistic into my clinical presentation. Either way, I plan on going to get a second opinion. I'm trying to find peace with the diagnosis...
  4. C

    Concerned and Testing EMG/MRI Next Week

    I had the EMG yesterday, unfortunately it did show motor neuron damage and denervation in my left arm and left leg. My left arm was on the ulnar side near my pinky. The left leg was my flexor ability (admittedly I haven't noticed any issue with my legs). My right side was unremarkable with no...
  5. C

    Concerned and Testing EMG/MRI Next Week

    Hi Laurie, I do really appreciate your message, there was more backstory I didn't mention because I didn't want to flood this forum with something that is clearly not ALS. I have been IGG/IGM positive for Mycoplasma Pneumonia every month for 9 months. I was 600 IGG (>320 positive) and 1864...
  6. C

    Concerned and Testing EMG/MRI Next Week

    Hi Nikki, I appreciate the reply, if the MRI/EMG/Spinal Tap don't give clarity I am planning a trip to Mayo Clinic in MN. I'll probably go there regardless for a second opinion. What things would not be indicative of ALS? I guess the tongue fasciculations/tremor, bilateral facial weakness...
  7. C

    Concerned and Testing EMG/MRI Next Week

    Hello, First of all, I'm sorry to those of you that are here. Given my last 10+ months of symptoms, I try to empathize with those of who have been diagnosed. I pray you stay strong and hopeful in what I can only imagine feels so hopeless. I have been a very healthy individual my whole life...
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