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  • Users: TeriC
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  1. T

    I’m so frightened

    Affected, I and many people have reached out because of legitimate fears (despite your opinion) and truly value the responses from those who have this disease or those who have been impacted by it. My issues may in fact not be AlS, but they are dibilitaitng and frightening just as yours was to...
  2. T

    I’m so frightened

    Thanks for your replies. I’m trying not fo bother you. I now have tingling of the tongue and sometimes my lips go numb. My tongue looks like it is twitching and at times a word or two doesn’t make its way out correctly because of this. It also feels thick (sometimes). I’m working with a doctor...
  3. T

    I’m so frightened

    Laurie, Thank you so much for your response. I forgot one big piece of information because it wasn’t happening at the time. For several months, I feel that I won’t be able to swallow. It went away for a time, but yesterday came back. I noticed it while taking a drink. I don’t know if this is...
  4. T

    I’m so frightened

    Hello Everyone! First, I’d like to say that I’ve been reading many messages and I’m humbled by your strength and positive attitudes. I’m writing today in the hopes that I can get some help from those of you living with this disease. I’m so beside myself that I can barely function. For many...
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