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  1. J

    Thank you so much for reaching out. This means a lot! I’m very sorry for your loss

    Thank you so much for reaching out. This means a lot! I’m very sorry for your loss
  2. J

    Pillow recommendation

    Thanks for the help everyone!
  3. J

    Pillow recommendation

    She is a side sleeper but tends to roll more to her back. She still has mobility in one arm but strength is an issue for her to reposition herself and her pillow.
  4. J

    Pillow recommendation

    My PALS is struggling with pain in her neck and shoulders due to holding her head up. We have a neck brace for during the day but she’s not comfortable at night. Looking for recommendations on a good pillow for sleeping. Thanks!
  5. J

    What an amazing support system!!

    Thank you for the information. I’ll be sure to ask her team at her next clinic appointment exactly what the genetic testing involves. Thank you every one for the warm welcome. I plan to spend a lot of time on here educating myself and learning about other’s journeys
  6. J

    What an amazing support system!!

    Good morning, I am new here and was just looking for some help. Sorry for the long post! My Mom is 60 and was diagnosed with respiratory onset ALS on April 28/21. She has been struggling with breathing issues for the past year. Our GP and her respirologist passed it off as COPD. She’s been...
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