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Have already tried amitriptyline and the under tongue drops (eye drops) and the other Glycopyrrol, nothing works. Still saliva pools under my tongue and spills out my mouth. I sit there half the time with a paper towel or Kleenex in my mouth or wiping constantly. They set me up for Botox when I...

Just seems strange to me, my insurance always pays for all my meds prescribed, even the expensive Radicava, but doesn't ever cover Riluzole...should I try to look into why? I've been taking it since last July. Didn't know if anyone else has seen this with theirs. (UnitedHealthcare)

I've had mine since September and it's still oozing stuff daily. (not leaking, just wound oozing) and it's always sore around the peg. hurts! Thinking of getting into the Dr to see if there's anything topical to put on it to help it heal or whatever, Plus I'm a large chested female and HAVE to...

I had the Prior Authorization done last year, which took forever, finally was approved last year for 6 months from my insurance company. Now I have to have the neuro do it again and waiting back to hear. I'm going to probably have to cancel all my infusions for next week as it's only authorized...

I have lost so much facial muscles my face is pretty flat, my eyes sunken in looking with bags under them and Eyebrow line sunken down, and major forehead wrinkles. I've never been one to ever want to think about Botox or chemicals in my skin. But I just look so awful in pictures and people...

They put me on Amitriptyline and that hasn't helped. I just wondered if there are other meds that can help with that and can be taken during the day that's non drowsy or I know there is the option of Botox injections into glands, but wanted to know if anyone thought that helped. I go back to ALS...

I have bulbar onset and have pseudobulbar effects as well, too much saliva etc. and so first they put me on Amitriptyline and that didn't really do much so now I have the prescription for Nuedexta. Didn't know what anyone experienced for side effects and if I should take before bed or in the...

Just wondered how I go about renewing for 2022 with Searchlight Support? They sent something in the mail which I can't find. Their website isn't really clear. I went and did a docusign and signed it with today date. Unless I have to fill everything out all over again like an application...

I have Bulbar onset ALS. Obviously we all have depression over this, and I know there are things that you can take long term. I have a prescription for Zoloft I haven't started taking yet, because I have been going through so much I didn't want to throw my mind into whack with antidepressant...

I was diagnosed the last day of June, in July I decided I wanted to try the Radicava infusions. Everything got started with my neurologist office, finding out if my insurance covers it etc. It does, then they contacted radicava, and then Searchlight in case I need to have any copays covered...