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Thank you very much for your quick reply Nikki, I really appreciate it. I watched the video from the genetic counselor you posted and have realized how complicated it can be to test someone when the mutation (if there is one) is unknown. What do you think the best way to stay connected to the...

Hi, I’m a 35 year old woman who just lost her wonderful 77 year old mother to ALS. She began showing symptoms a year before her death. Once she became sick, it has come out that some other family members on her father’s side had ALS. I was told her father (my grandfather) died of 83 after a...