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Apologies for posting again. I’d be going pretty well while still waiting for my EMG but I have had some new symptoms which has really set me back mentally. Started to experience shoulder pain in my weak arm, I attempt to lift my toddler up in the air but I just couldn’t do it. Have had to go to...

Thanks affected. Sorry to hear about your husband. I know I’ll be in good hands with “Hendo” 😉. Great idea with the cancellation list. I’ve also got an appointment with the neurologist who referred me to him this week just to ask a few questions about his thoughts and reason for referral in...

Lovely advicethanks. Dr Robert Henderson although I just got advised today that my appointment isn’t until the end of December. It will be a long wait 😬. Got my blood results back & all normal eg CK, thyroid and all the rest. I find it so ironic that with every test eg MRI, NCS, bloods that get...

Thanks Nikki, much appreciated.

Hoping someone out there can answer a couple of questions. Still waiting on my 2nd neuro consult and EMG. The longer I wait the more my anxiety increases. I’ve been referred to a neuro who specialise in MND and neuromuscular disorders so that makes me even more nervous. I have left arm...

So sorry for the delayed response, life kind of got in the way and I’m just in limbo waiting for my referral to the Neurologist who works both privately and publicly at RBWH. He specialises in MND but obviously also other neuromuscular disorders. Given the neurologist I saw referred me to him...

Thank you and thank you so much for responding. Im not completely sure what language has been used about weakness. All I know is on physical exam at the GP and Neuro they both when conducting physical exam (you know the push me away, pull etc etc) noticed the left arm weakness. Will make sure I...

Hi all, Thanks for reviewing. Im a 43 yr old mother who has had left arm weakness for about 9 months now. Dexterity in my hand is fine just generally weakness when trying to lift it move things. Weakness noticeably on examination by doctors. I also have nerve fluttering in different parts of my...