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The supplements which folks have found list the probiotic as "lactobacillus rhamnosus HA-114". The study article lists the probiotic as "Lacticaseibacillius rhamnosus HA-114". It sounds like two different strains of bacteria. Is that not the case? Harvey

Hello Tia. I was diagnosed on 10/2021 and about that same time began taking the off-label Sodium Phenylbutyrate (SP) and TUDCA. Initially I had no significant side effects, other than having to deal with the terrible taste which I describe as sewer sludge. Lately it has been giving me heartburn...

I will join the chorus. I too am UMN dominant and experience frequent urinary urgency. Now that I am in a wheelchair I can get to the toilet much quicker than with the walker, but after a few embarrassing accidents my plan is this: If I have two tasks at hand, and one of them is to go pee, that...

In my pinon... (said the squirrel as she was eating a nut from the tree) FRET

total Taste orange tacos and laugh. LAUGH

I was officially diagnosed with ALS at an ALS Clinic at Providence Hospital in Portland Oregon on 10/11/2021.

Thank you all for your concern. (Sorry I tried to post in another forum thread. Now I get it!) I used the term "supportive alternative care" to describe care which hopefully can make me feel better and support my general health. Needless to say, I do not expect a cure or even a significant...

Previous thread I have a "suspected" ALS diagnosis, I am taking Riluzole (with the only noticeable effect being somewhat light headed) and recently Baclofen (which has significantly helped stiffness in my ankles). A walker or using two canes provide adequate stability for some slooow walkin'. I...

I received the narrative of the results of my second EMG study done about 4 months after the first study. I did not receive the raw data from the test. Do you think it is important for me to request the actual numbers and graphs, or is the narrative enough information for other doctors to use...

Thank you both for the your response and advice. I have actually had two EMG's tests performed, one on 1/26/21 and a seemingly more extensive one done at OHSU on 5/18/21. Following your advise, I requested my test results and received the results from the first one just yesterday. The more...