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Thanks for your replies. My Dad actually passed away suddenly today it was such a shock to us. I will be fundraising for this cause. The route to diagnosis alone is horrendous.

Hello. My Dad will soon be attending the centre of excellence however the neurology team have asked him a lot of questions about where his symptoms started. My Dads breathing is very compromised already although he says this started with foot drop. His voice was affected soon after the foot...

Hello. Thanks to the people who set up and moderate this forum it is most helpful. I’m currently supporting my Dad through his journey to diagnosis which has been long. Have read many posts on here which have been very informative and helpful. Would anyone be able to shed light on why a...